| Location | Glasgow, Scotland |
| Age | 5 months |
| Date of Birth | 4/2007 |
| Date of Death | 9/2007 |
| Visitors | 5,215 since 19/09/2007 |
| Creator |
James ( Jim Jim ) born at Princess Royal Maternity 28 Apr 07 - 11 Sep 07, he passed away at Rohin
House ( Children Hospice ), in mummy and daddy's arms.
James was born with a genetic skin condition called Epidermolysis Bullosa (EB), Mummy & Daddy
had no prior warning that he will be affected, he has the most severe form of EB and it's fatal
in infancy.
He lives forever in Mummy, Daddy and Big sis Kel's hearts.
Letter to Jim Jim, from Mummy, Daddy & Big sis Kel.
**********************************************
I wrote this letter after James passed away on Tuesday, 11 Sept 07, in Robin House, the original
hand written one was placed in his coffin.
I read this letter to him on his funeral service, 14 Sept 07, Friday.
***********************************************
Dear Jim Jim,
Jim Jim,Mumm, Daddy & Kelly, love you very much. The day I discovered I was pregnant with you, I
felt so happy, I tried so hard, I ate well, I wanted to give you a healthy start. Little did I know
that you were never healthy from day one, you know what Jim jim, Mummy and Daddy's world
stopped when we were told that you've got a condition called EB, we could not think, we had so
many questions but none of them could be answered.
The day they took a skin biopsy, we were there, we could hear you cry, it broke our hearts. We kept
thinking about your future, we really wanted the best for you but then with EB, we could not see any
future, the future looked very grim, Mummy cried so much but then when I fed you, you kept looking
at me and you were such a good baby, you only cried when you were hungry, you are mummy's
little boy.
When they told mummy that you've got the most severe form of EB, Junctional Herlitz, Daddy and
I felt a little relief, we love you so much, we would never want you to live with EB for a long time
then still die eventually, we both thought, we love you Jim Jim, we want the best for you
that's why we felt relief, we really never want to watch you suffer and watch you go.
Mummy could not enjoy you in the early days, I found it very hard, I could not come to terms with
your conditon, but then strangely, I slowly coming to terms as the time went by, I tried not to
think about your EB so much, I started to enjoy you, I found ways to enjoy you, we played Mr.
Octopus together, when you managed to grab Mr. Octopus, Mummy was so proud of you, I watched Babytv
with you, I sang you songs, I sat in the garden with you, I pushed you in your pram, it is true that
I could not do much with you cos I could not really touch you, but I enjoyed being with you Jim Jim,
like I always said, you are the best boy in the world.
Mummy really wanted to play with you, like, lift you up under your arms, bath you, wash your hair,
but I could not do any of that, not that I didn't want to , I just didn't want to hurt
you.
We never liked giving you your drugs, your morphine, changing your dressings and popping your
blisters with a needle, mummy found it very hard, even after more than 4 months, changing your
thumbs, mummy cried each time in my heart.
As time went by, I could see your courage Jim Jim, but then I did not want this to go on any longer
for you Jim Jim, you ears started breaking, bleeding and so as your thumbs, there was no skin left
on your thumbs, mummy could do nothing but watch, still, I thought you were amazing, you gave me the
courage to live with your EB.
The final week was hard, it must be harder for you cos you were the one who lived with EB not Mummy,
Mummy spent Monday night with you in Robin House, I watched you sleep, knowing it's probably
the last time I see you sleep, you slept for a long time, didn't cry, you looked so lovely,
mummy cried though, I will never see you again, touch you again, feel you again, but we listened to
this tune together, our tune, you and me, the nurse saw mummy crying and she asked if mummy wants to
lay next to you and I did, I was watching you in tears, when you started going cold, I placed my
hands on your face, I held your hands, Mummy wanted to protect you and wanted to keep you warm.
At the end, Jim Jim, Mummy, Daddy, Grandmum and Auntie were all there for you like we always were,
Mummy & Daddy placed our hands on your chest, we could feel your heart beat but the moment it
stopped , our world stopped too, part of us is missing, we told you to go, Mummy said to you,
it's okay Jim Jim, you look after yourself now Jim Jim, Mummy cannot look after you anymore, be
a good boy for Mummy, I know you will be, we love you.
Mummy & Daddy finally got the chance to hold you, without your spenco mattress, I kissed you Jim
Jim, you live in our hearts and our love for you will never die.
Love you our boy Jim Jim, we miss you.
Love,
Mummy, Daddy & Big sis Kel.xxxxx
----------------------------------------------------------------------------
**We are lucky to have had DebRA & CHAS 's support, wonderful charities and wonderful
staff** Our community nurses based in Yorkhill, are angels too. **
In loving memory of Jim Jim, we support DebRA & CHAS
www.debra.org.uk - the only charity working for people living with EB
www.chas.org.uk - lovely charity working for children with terminal illness
\:’\’\::|::/’::/’/’
....’\’\::’\:|:/’:/’/’....___,•’`�`’•,
.....’\’\’\|/’/’/’......../..........._/
.......’\’\|/’/’...,.~~/=====_/
........[||||].....(_________)
..........||.....,•’`.._....._....`’•,
..........||.../...... (o)(o)` ......\
..........||..|............X ...........I
..........||...\.......\____/......./
..........||.....’•,_............._,•’
.........,||..,~•��\\\\(@)//__
.....,•’`.||..............////\\\.......`’•,
.....’,...||.............////O\\...........\
..,•’`...,||•’`�`’•,...////.....\\..….\
..’,_______,•’..///...O...../......|
.......,|.||.........................\..….|
....../..||.............O.................I
/’��`’•,_||............................./
_.’•.___.~...’`.......,’•._,.•’•,_..•’
.....’•.__,.•’•.,_.,.•’...............
My Christmas Wish For You
My Christmas wish for you, my friend
Is not a simple one
For I wish you hope and joy and peace
Days filled with warmth and sun
I wish you love and friendship too
Throughout the coming year
Lots of laughter and happiness
To fill your world with cheer
May you count your blessings, one by one
And when totaled by the lot
May you find all you've been given
To be more than what you sought
May your journeys be short, your burdens light
May your spirit never grow old
May all your clouds have silver linings
And your rainbows pots of gold
I wish this all and so much more
May all your dreams come true
May you have a Merry Christmas friend
And a happy New Year, too ..
xxxxxxxxxxxxxx
♥ * Just * X . ♥
X . . * ♥ . * ♥. * X
♥ X*Sprinkling* . ♥
X. . * ♥ . X * . * ♥.
♥.X *Your * Page X* ♥
X . ♥ * . ♥ * . * X.*
♥.* X With * Some.* X. ♥
. * ♥ * * X . *+ * X ♥ X
X ♥ * . Love ♥ . * X ♥
Always be loved
Jim Jim, mummy misses you everyday. Sometimes Mummy feels thankful that I have a son like you, and you were so brave..you made it to see Mummy & Daddy..some babies didn't make it to see their Mummies but you were determined, even though you were never well, you made it to see me.
I have a little boy and you will always be my little boy, I know you are growing and you are 16 months now Jim Jim but you are little Jim Jim in our hearts...our little boy. Mummy loves you so much.xx
he is beautiful
oh he is so beautiful its hard to write this through the tears but my heart go's out to you and your family . I have not lost a baby but i am a mother of 3 girls and i know when i had my last little girl last year at 3 weeks she stoped breathing but my grandmother was able to help her and as the ambulance arrived she was alright as i was out at the docs at the time but just the thought of losing her was horrible. so i cant even imagin how you felt and still do . And those eyes they are just beautiful .
you must miss him so much.. but im sure he is watching over you with those big beautiful eyes
xx little man i hope you are having fun with the other beautiful Angels that have gts xx
A beautiful Angel
Every day and every night
When you feel the need
to hold me tight
Just blow a kiss into the sky
for i will be that close by
In the heavens throughout the day
I watch over you and hear you pray
I see you smile and shed a tear
For you know that im still near
I'm the angel of your eye
Your angel in the sky
Dearest Jim Jim
Jim Jim,
Today is my birthdsay. I wanted to share it with you if you and your mummy and daddy dont mind.
My mummy has had so many mixed emotions today and she didnt know what to do to make things better. I am 1 year old today.
My name is Brida Elizabeth, and I too suffer from the terrible affliction that is HJEB. Against all odds and against all reason I am able to send this message to you today. I am still fighting what will one day take me from the people I love and deliver me to your side, and I am happy knowing that you are there waiting for me.
I wanted you to know that as we celebrate today with my milestone and as we marvle that I am still with mummy and daddy, that we also have had a celebration of your life. You and I although we never met were so close.. Close in age and in spirit and every day I carry a little piece of your beautiful soul with me and I remember you.
We are specal determined little people and we have a special bond in our little tiny lives. I wish that you had been able to stay for your first birthday too Jim Jim. I wish that mummy and daddy had been able to hold your little hand and blow out that candle on the cake with you like I have done today.. although today was filled with happiness we also felt great sadness knowing that today will be my one and only birthday. But it was special.
I hope I have helped in some way by joining the celebration of my life, with a celebration of yours today too. Every year from now on, when mummy and daddy rember me, they will remember you too
With all my love, Kisses and Cuddles,
Brida Elizabeth xx
For Jim Jim and his mum and dad
Jim Jim, what a beautiful boy you are. I have read your mum's letter to you and am sorry that you can no longer be together and that she didn't get to do all the things she wanted to with you. But I am glad that you are no longer in any pain, brave boy. xxxxxRuth Ben Max and Keir
Create an ever lasting memorial for your loved ones.
Start here »
Using the options below you can add this memorial to your personal garden.
| I am James' ... | |
| Add to Garden: | |
| Notifications: | Text Message |
There have been 405 candles lit for James.
